Research Manager - [Archived Advertisement]

Research Manager

The development of therapeutics for Sanfilippo Syndrome is urgent. Sanfilippo Syndrome is a rare genetic condition that results in childhood dementia; these children will die before they reach adulthood. Help us find the solutions. 

The Role

We are looking for a Research Manager who:

• will own all aspects of the Sanfilippo Children’ Foundation’s Research Program

• cares about our cause

• has a “can-do” attitude and knows how to get sh*t done

• is not afraid to take risks and try new things

• will bring good strong energy to the team

• is professional, creative, organised and efficient.

The role is flexible in location, days and work from home: office presence. Some travel will be required. The role is supported by a part-time Research Coordinator. 

What you will do

This role is responsible for all aspects of the research program at the Foundation. This includes:

• With the Board and CEO, developing and delivering the research strategy. 
• Managing all aspects of the annual competitive grants round. 
• Maintaining relationships with the Scientific Advisory Board, funders and researchers. 
• Development and execution of a therapeutic roadmap. 
• Maintaining understanding and awareness of global players, progress and opportunities in the Sanfilippo research field. 
• Supporting funders, team members and affected families to understand the research. 

Sanfilippo Children's Foundation

We are a young not-for-profit, established in late 2013 to fulfil an unmet need funding medical research into the rare genetic condition, Sanfilippo Syndrome.

The purpose of the Sanfilippo Children’s Foundation is to drive research for a world without Sanfilippo Syndrome. Sanfilippo is a serious condition, delivering the most devastating outcome imaginable to patients of the disease and their families.  But there is hope.  There has been significant clinical progress in recent years and we believe that an effective treatment is within our reach.

The research projects we fund aim to either halt the progression of Sanfilippo; reverse its effects; or improve the quality of life of children who suffer from it.

We have committed AUD $4.7m across 24 projects into research since our inception. We have an esteemed scientific advisory board and strong collaborative working relationships with our sister organisation internationally. 

To find out more and apply

For a full role description and details on how to make an application click the Apply button.